Why are you sitting there reading my blog?! If you can get up and get outside today and move, please do! Let the wind kiss your skin and run freely until your legs feel like jelly, please do that for me. Ok? I was going to go for a 5+8 mile ride but now it is raining cats & dogs! Guess I will do laps in the hotel hallways- the carpeting makes it hard to "push". Oh well, I need to practice what I preach. I hate the numbness in my hands as I type this blog to you on my Blackberry. One more symptom we MS Warriors share. Health Update: I'm having my skin cancer removed in 2 wks. 4 inches of my left shoulder removed, 3 hr surgery & you are wide awake! Then no upper body workouts for 2 to 3 mos. Grrrr! God Bless you all!
Just got back from a 5 mile ride in my chair. 78 degrees today. Not many more like this in the near future. Lord how I miss Arizona! Be back by spring- I cannot wait! Today is about a "5" pain wise & that is as good as it gets...A good day for me would put most non-M.S.ers in the ER begging for morphine. Ironic. We get used to so much: Spinal Taps (L.Ps) multiple blood tests, I.V.s, urinary catheters, wheelchairs, walkers, no more driving, just to name a few & if you are a man; Viagra (Where do they get off charging $28 a pill for that?) Insurance companies don't think M.S.ers should be able to have a love life? Strike that insurance companies think we should pay to have a love life.. Last time I checked that was illegal... M.S.: the gift that keeps on "TAKING" Be safe & God Bless
Howdy folks! I had a nice treat; my wonderful wife Kathy has a 3 day weekend & we are spending every minute together w/our silly dog Halligan (we named him after a firefighting tool), got him from the shelter & trained him ourselves to be my service dog & he is so fun & funny! :) My poor wife works full time on top of taking care of me. I know all of you caretakers and family members can relate-she's had to learn so much about medicine, shots, I.Vs, catheterizing & pathophysiology. It does help that I was a Paramedic Instructor. Things are getting a little tight right now... Who I am kidding? We are so broke we can't "pay" attention. Too broke to "change" our minds ha ha ha! At least we can still joke about it- my MS may steal nearly everything I got but it will never deny me my sense of humor...Lucky you! :) My medical expenses & co-pays eat up my pension & even though Kathy has a business degree & worked for Merrill Lynch for 20 yrs all she has been able to find is a minimum wage job. We can't get ahead & want to move back to Arizona but we can't afford it. It's a mess! All of our furniture and personal belongings are being held up at a moving company in Phoenix and we don't have enough to move our belongings out here, which is one of the reasons we're calling a hotel room home. Keep us in your thoughts and prayers! Good health to all and God Bless.
Good morning my fellow MSers and Team #GPP! I am one of those lucky few MS Warriors that has "Parkinsonian Effect" which makes my ten lb head (yes folks I can admit it... I have a big head!) bobs continuously unless I am lying down with my head cradled in a pillow and what fun is that? It makes working out hard. Every 3 mos. I have to have eight I.M. injections in my neck muscles which over the next 2 wks calms the problem by aprox. 90%. If any of are y'all have this malady tell your Nuero to look into it. It works! It stops the neck tremors which are quite painful. What is this wonder medication you ask? Botox-(Anabotulinum Toxin A) Large dose; 300mg. Cosmetic doctors use 1-5mg. You may feel sick for a day or two but the results are well worth it. God Bless all of you! Patrick Taylor NREMTPA
I'm a retired firefighter, loving husband, proud father, bad joke teller, gym rat. I've been called a warrior who is battling Stage 4 Multiple Sclerosis and Parkinson's Disease. Rather than letting it define me- I'm redefining what it means to live with these diseases. If I can look on the bright side...So can you!