This flare up doesn't seem like it will ever end. Not getting my work outs in except for my daily 1,000 crunches, my dumbbells & 5 miles in my chair. Lots of pain today...oh well. Tough ride today. I am NOT going back in the hospital this time. God Bless you all.
Another MS day. 4th doctor appointment this week. Nothing new...She is a caring doctor but she admits that I know more about MS than she ever will. That is true of us all. Sad. Wouldn't it be nice if the cell phone companies donated half of the billions of $ they're making on these new phones to MS Research? Maybe they might be able to figure out what causes this cursed disease. My phone works just fine & it's a 4yr old BlackBerry :) that I am typing this Blog on right now. Peace, health, love, & God Bless
Another day of beating myself up at the gym & a 5 mile ride. I am tired & need to rest & so I will. Kathy is at work but will be home in 2 hrs! Yay! I am hurting today. I saw my BOTOX Specialist this morning so next month I will get 8 Intramuscular injections (big needle) in my neck because in addition to my MS- I am unfortunate to have Parkinsonian Effect (a form of Parkinsons) which only affects about 1 in every 1,000 of us MS Warriors. It causes my head to "bob" incessantly. More pain; FYI your head weighs about 10 lbs. The BOTOX reduces the bobbing by about 90% which is a major relief. It only lasts around 2 months and the insurance companies only pay every 3 months, so I go back to misery in 2 months. God Bless you all.
How are you all feeling this fine almost Autumn day? I hope great! Me, I am getting ready for the gym. I am back from my 2hr workout. Arms & legs...ouch (: I don't know how I do what I shouldn't be able to do but I do it. If I can inspire you to do anything, it's this- do ANYTHING YOU CAN to fight this eventually deadly affliction. You are the only one that can buy yourself time. God Bless you all.
Feeling better today. MS- every day is different. To borrow a line from a fellow GPPer, Mr. Forest Gump- "Life is like a box of chocolates, you never know what you're going to get"...Of course a "good day" for me would put most people in the E.R. screaming for morphine. Me-- it means I can beat myself up at the gym for 2hrs & go for a 5 mile wheelchair ride. Done. (: My wife has the weekend off (: YEEHAW! & she will be home in 3hrs! The dog won't be sleeping between us tonight (; !! I pray that my fellow MS.ers have a good day & weekend. Remember to enjoy what good you get; it is not all bad. We are all in this together; what a nice club to be thrust into without our consent. God Bless you all & if you are from the south God Bless y'all (:
Typical day after my 2 hour gym workout: chest & back. Sore, duh! 80 plus sets. I don’t know if it's my hard work or MS. duh! Back to crawling. Watching my wife get ready for work. Bitter sweet because I get to watch my beautiful best friend but it means I get to be alone for the next 9 hours. I hate that. Sometimes I feel like a little boy, trying to learn how to walk again,' wearing Depends "briefs" which are really fancy adult diapers. Sure they beat the alternative but call a spade a spade. So many things I will never do again that I always loved; hiking the mountains, mountain & road biking, motorcycling, heck just driving!!!! You DO get used to it but sometimes you might wish this was a "terminal" disease because @ least then you would know how much time you had left. I AM happy to be alive & have a beautiful loving friends like Lauren of the greater purpose project.com. Don't ever give up or into it. I don't & never will. My wife came up with a new meaning for M.S. : MY STUD. I try to live up to that flattering nick-name (: Peace to all.
It is our life. It let's you know you are still alive. Ever have to crawl to the bathroom? Today is a lie in bed & watch Sci Fi day. The pain pills do not work. But I know I am alive! Yes, pain is something M.S.ers have to look forward to. It is inevitable. I fight it with painful workouts & miles in my 5,500 dollar titanium wheelchair. Sadly I cannot do it today as it is a crawling day. Anyone else have those days? The doctors think that can't be but they can't tell you why you have this malady in the first place! Tomorrow I WILL beat mY Self up @ the gym & I will do 5 miles in the chair because THAT is my GREATER PURPOSE. Do not let this disease beat you or define you. We are all better than that. Yes MS also stands for "Mainly Sucks" but you are still alive! So live. Fight!
I'm a retired firefighter, loving husband, proud father, bad joke teller, gym rat. I've been called a warrior who is battling Stage 4 Multiple Sclerosis and Parkinson's Disease. Rather than letting it define me- I'm redefining what it means to live with these diseases. If I can look on the bright side...So can you!